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The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally.
On February 14, 2001, my daughter Madalin Starr, developed a barely noticeable shiver. At 16 months old, she had always been healthy and was very active
This mailing list is dedicated to those that are affected by Opsoclonus-Myoclonus Syndrome.It's to share imformation, treatment, and options. More importantly, it's an opportunity just to share with others that are affected by the rare disease of OMS
