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The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally.
On February 14, 2001, my daughter Madalin Starr, developed a barely noticeable shiver. At 16 months old, she had always been healthy and was very active
This mailing list is dedicated to those that are affected by Opsoclonus-Myoclonus Syndrome.It's to share imformation, treatment, and options. More importantly, it's an opportunity just to share with others that are affected by the rare disease of OMS
Welcome You have probably arrived at this website because your child was recently diagnosed with opsoclonus-myoclonus syndrome (OMS). Please click through our menu to help find answers to your questions.
